The "John of Ohio" Meniere’s Regimen
Anybody who has been diagnosed with Ménière’s Disease (MD) knows that it’s a struggle. A struggle to be understood; a struggle to find answers; and most of all a struggle to live with every day.
At the beginning of diagnosis a GP will likely refer a suffer to an Ear, Nose & Throat (ENT) specialist who will then request a hearing test, electrocochleography, a CT scan &/or an MRI. Once the results are in the ENT might tell the patient something like this… “Well it looks like you have Ménière’s Disease. Try avoiding salt, caffeine & alcohol. Here’s a script for a betahistine (Serc), diazepam (Valium), prochlorperazine (Stemetil) and indapamide (Natrilix SR). If it becomes really unliveable come back to me and we can look at some options for surgery.” That’s about the extent of advice & support the medical community offers.
Hmmm, which is more frustrating? The dizziness, nausea, brain fog, hearing loss, tinnitus, aural fullness & debilitating attacks of MD OR the incredible lack of understanding in the medical community to find real answers for the cause & cure of this disease, as well as practical solutions for its management? I think it’s too close to call.
Because of the lack of support & solutions available, those with MD must find their own path to better living until the medical community can offer some real answers and better outcomes. One such sufferer offering ideas is “John of Ohio” who posted his regimen here: The John of Ohio Meniere’s Regimen
The following items (or closest I could find on Amazon) are from John’s regimen (the comments next to the items are his).
Best wishes to all those searching for wellbeing and a brighter future, and thanks to John of Ohio for having a crack at a very complex health issue.
See my Amazon Listmania! List for The "John of Ohio" Meniere’s Regimen here:
Thank you so much for your blog. I have been suffering from Meniere's for over 10 years with scripts for prednisone and valium. I'm excited to incorporate this supplement approach with your positive affirmation!
ReplyDeleteHi Jaime,
DeleteThank you for your kind words & for taking the time to leave a comment.
I really can’t take the credit for this page as it is John’s regimen. He’s a lovely fellow who is contactable via the link in the post.
I will be adding more of my own thoughts & research on diet over the coming months. But like they say, Rome wasn’t built in a day, so I just try to add what I can to my blog here & there.
It’s definitely good to keep the prednisone & Valium usage to a minimum. Both supress the system (prednisone supresses the immune system while Valium is a vestibular suppressant). I have only done two courses of prednisone, both of which had good results at the time. Since you’ve had Menieres for quite a while you may find an intratympanic Dexamethasone injection beneficial.
With regard to Valium, the most I have ever taken at a time is half a 2mg tablet. A quarter is usually enough to minimise/stop an attack for me. To supplement or compliment Valium for vertigo management, I highly recommend vestibular rehabilitation therapy. Instead of supressing your vestibular it will help you re-train your brain to cope with the damaged vestibular signals and improve your vestibular-ocular-reflex. I’ve had this rehab and found it very helpful. I will be writing about this in the near future too.
I hope you find some improvement.
Best wishes,
Beatrice :-)
Been following the JOH regimen since for a while now (months, not years) and have almost implemented all of the .... ingredients to having a 'spin free' day and SUCCESS!! (most days) I still get dizzy and even spin sometimes, but NOTHING like I used to. This regimen certainly has helped moi.
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