Showing posts with label Hearing Loss. Show all posts
Showing posts with label Hearing Loss. Show all posts

Friday, 18 January 2013

I Was Attacked In The City


I was attacked in the city today.

It was around lunch time so the mall was full of people. I had just left a business meeting with my 85yr old father. Although I try to walk slowly to stay close to him, I usually end up a couple of metres ahead.

As we were walking down the lower part of Brisbane’s Queen Street Mall, I noticed the awning above had cast a striped shadow on the pavement in front of me. Without warning, my head & left ear tingled like a sharp electric shock, and suddenly, everything started to spin violently. I rapidly mumbled “f**k, f**k, f**k” and reached out to the left, stumbling towards a shop window.

Grasping the window with my left hand, I held my forehead with the other and pressed my head against the glass, to feel something stable & remain upright.

My father had now caught up to me and could see that something was wrong. I told him I was having a Ménières attack. There was little he could do to help other than stand nearby, watching with concern.

After a minute or so the vertigo started to subside, so I could now see the scene around me. A bench was a few metres away and I thought, “Maybe I should try to sit down?”, then I saw the face of a man seated on the bench. He was staring at me inquisitively, like I was a specimen in a bottle, or a drama show unfolding. I looked around and noticed a few other faces staring at me. Necks craned as they walked by.

Nobody stopped to help me; nobody looked sympathetic to my crisis. I wasn't bleeding. I wasn't old. I wasn't crippled. I looked strong, so why should anyone care? For the most part Ménières disease is an invisible illness, so bystanders have no idea of the terror that is being inflicted upon the sufferer during an attack.

The 19th century poet Henry David Thoreau wrote that most men lead “lives of quiet desperation.” This is tragically true of people afflicted by Vestibular disorders like Ménières disease. The isolation that comes from the ever present dizziness & hearing loss, punctuated by moments of frightening, spontaneous vertigo; surely there can be nothing so quietly desperate.

Dear reader, please remember my story and share it with others, so that people enduring Vestibular disorders won’t feel so quietly desperate & alone. Empathy & understanding go a long way.

If you are compassionate &/or can relate to my story please:

HAVE YOU HAD A SIMILAR EXPERIENCE? Share your story below.


Wednesday, 6 June 2012

God Save The Hearing: Queen Elizabeth Rocks the Ear Plugs



Even those without Meniere’s Disease appreciate the value of good hearing.

After sixty years in the business, Queen Elizabeth has had to attend more twenty-one gun salutes, female falsettos and rowdy state affairs than one should ever have to endure. But like all who are at the top of their game, she has a few tricks tucked in her tiara to get her through.

Those with (or without) Meniere’s Disease would be wise to embrace Her Royal Highness’s use of protection… ear protection. One doesn’t need fancy shmancy, diamond encrusted ear plugs. Just send Jeeves down to the local pharmacy with a mere 50p (AUD $0.80) and you too could be enjoying the benefits of minimised tinnitus and noise related hearing loss after the big event.

Ear plugs aren’t just for concerts; they’re great for everyday use such as:
·         when blow drying your hair at home or at the salon
·         when visiting noisy construction sites
·         on a tarmac or plane jetting to far off colonies
·         when minding the grandkids (or anytime you’re forced to be with other people’s children ;) )
·         water proof plugs while swimming or in the shower after an intratympanic Dexamethasone injection
·         or anytime you just want some (world) peace & solitude

Foam ear plugs come in packs of two or more and are easy to insert. Just slowly roll with a clean or gloved hand, compressing the plug into a thin crease-free cylinder, then insert well into the ear canal. Hold plug in place with fingertip until it has expanded. Simple!

If you accidentally drop one behind the throne, don’t despair, grab a fresh plug from the multipack and notify the staff to vacuum the soiled one up (Note: Ear plugs may be a choking hazard to Corgis, so don’t leave them lying around.) When not in use, keep your ear plugs hygienically protected in the container they came in.

Take it from the Queen, ear plugs are the cheapest insurance you can buy to protect your ears now and into the next jubilee. God save the hearing!

Above picture: Queen Elizabeth sports foam ear plugs which can be seen in the side view and ever so slightly in the three-quarter view. She then discretely removes them before going on stage with a beaming smile. Oh the joys of saved hearing! J


WHEN DO YOU USE PROTECTION FOR YOUR EARS? Share a comment below.

Sunday, 22 April 2012

MORE on Intratympanic Dexamethasone Injections to Reduce Menieres Vertigo Attacks

If you haven't read my post, "Reduce the Frequency of Vertigo Attacks with a Dexamethasone Steroid Injection" I recommend you read that first.

Meniere's Australia - Brisbane South Meeting UPDATE
The organiser of Meniere’s Australia Brisbane South asked me to be a guest speaker at their meeting last Sunday (22 Apr 2012).

We had a good turn out and discussion. I showed the group a video showing an intratympanic Dexamethasone injection for tinnitus (see link in this post). The video will give you a better idea of the procedure; however it doesn’t show the initial incision of the ear drum or the insertion of a myringotomy tube.

I also donated a copy of the book “Let’s Get Better” by S J Blanshard (aka Meniere Man). It’s a light read about one man’s personal experience with the disease (see link in my Recommended Reading column to the right). So now both the MA Brisbane North & Brisbane South groups have a copy that members may borrow.

Below are my speaker notes for the Meniere's Australia - Brisbane South meeting last Sunday where I shared my experience with an intratympanic Dexamethasone injection.


Reduce the Frequency of Menieres Vertigo Attacks with an Intratympanic Dexamethasone Injection

What is Dexamethasone?
Dexamethasone is a synthetic version of glucocorticoid, a class of steroid drug (like Prednisone but many times more potent).
Glucocorticoids are classic anti-inflammatory compounds that are used to treat autoimmune diseases (such as lupus, multiple sclerosis & rheumatoid arthritis).
Dexamethasone prevents the release of substances in the body that cause inflammation.

How can an intratympanic Dexamethasone injection reduce vertigo attacks?
Meniere’s Disease has no known cause or cure. One theory for the cause is that it is an autoimmune disease. 
If this is the case, then an intratympanic Dexamethasone injection could reduce vertigo and tinnitus by reducing the inflammation of the inner ear caused by an autoimmune reaction. This would improve hearing function, equilibrium & quality of life for the patient.

Will Dexamethasone damage my hearing?
There are dangers involved with any procedure, so discuss these with your specialist.
Unlike Gentamicin, Dexamethasone should not damage your hearing further.

How is the Dexamethasone administered?
The Dexamethasone is administered within the middle ear (intratympanic) by injection.
The injection is undertaken by an experienced ENT, Neurotologist or Otologist.

How long does the procedure take?
The procedure takes less than one hour.

What do I need to do before the procedure?
You may wish for someone to accompany you to the procedure and drive you home afterwards. This will give you the opportunity to keep your head tilted after the procedure and maximise the benefits of the injection.
Discuss the pro’s & con’s with your specialist.
Notify your specialist if you, or anyone you are in close contact with, are unwell or have been unwell over the past several weeks.
You may wish to take an anti-nausea tablet (such as Stemetil) and half a tablet of Valium 2mg to assist in remaining calm during the procedure, though this many not be necessary.

What do I need to do during the procedure?
Follow directions. Lay still and relax.
You may benefit from visualising your “happy place” (i.e. warm beach, cool breeze, soft waves on the sand).
You will likely experience some minimal vertigo during the procedure. This will be due to the difference in temperature between your middle ear and the steroid solution. The vertigo will likely pass within a minute or two, so stay calm and try to relax.
After the injection you will be asked to roll over onto your “good side” so that the treated ear is upturned.
For the next 20 to 30 minutes you will need to keep your treated ear turned up (facing the ceiling).
Avoid swallowing, popping your ear, yawning, or blowing your nose. Any of these motions could cause much of the Dexamethasone to flow out through the Eustachian tube (which runs off the middle ear).
The aim is to keep the steroid in the ear as long as possible.

Is it painful?
In my experience the procedure wasn’t painful although it could be for some people. Temporary discomfort &/or a dull ache will likely be experienced; however this is outweighed by the potential benefits of reduced vertigo and tinnitus.

What do I need to do after the procedure?
Keep your treated ear tilted upward for at least 30mins.
Keep the treated ear dry until the incision in the ear drum healed (about 3 to 4 weeks). When showering, use ear putty & a shower cap from the chemist to keep the ear drum dry. 
Steroid medication can weaken your immune system  so avoid people who have, or recently had, an infection. Also try to avoid stress.

Will I benefit and, if so, how long will the benefits last?
Results will vary between individuals and some may require follow up injections every three to six months.
According to one study from 2005*, after five consecutive daily intratympanic injections of Dexamethasone (4 mg/mL), 82% of patients achieved complete control of vertigo at the 2 year follow up, while the remaining 18% showed substantial control of vertigo. There was also a subjective improvement in tinnitus (48%), hearing loss (35%), and aural fullness (48%).

* “Dexamethasone inner ear perfusion by intratympanic injection in unilateral Ménière's disease: a two-year prospective, placebo-controlled, double-blind, randomized trial.” Garduño-Anaya MACouthino De Toledo HHinojosa-González RPane-Pianese CRíos-Castañeda LC. Department of Neurotology, National Institute of Neurology and Neurosurgery, Mexico City, Mexico. 

How much does the procedure cost?
The procedure costs approximately AUD $275 (less Medicare & private health care rebates). This cost would vary between specialists.

For more on the Intratympanic Dexamethasone Injection procedure contact your ENT, Otologist or Neuro-tologist. If you’re in Queensland, Australia, I can recommend Dr Chris Que-Hee.

CONTACT DETAILS
Dr Chris Que-Hee - ENT / Neurotologist. 
Ph: +61 (0) 7 3831 4400
Watkins Medical Centre,
Level 10, 225 Wickham Tce, Brisbane,
Qld. Australia. 4000



This HD video demonstrates how steroid injection is performed into the ear for patients suffering from sudden sensorineural hearing loss.
As mentioned, the video will give you a better idea of the procedure; however it doesn’t show the initial incision of the ear drum or the insertion of a myringotomy tube.
Copyright owner http://www.FauquierENT.net 


DO YOU HAVE EXPERIENCE WITH INTRATYMPANIC DEXAMETHASONE INJECTIONS, OR A QUESTION? Please post a comment below as I’d love to hear your thoughts.


Disclaimer
This website contains general information about medical conditions and treatments. The information is not advice, and should not be treated as such. The medical information on this website is provided without any representations or warranties, express or implied. Beatrice T via the Inner Ear Journey blog makes no representations or warranties in relation to the medical information on this website. Without prejudice to the generality of the foregoing paragraph, Beatrice T via the Inner Ear Journey blog does not warrant that:
§   the medical information on this website will be constantly available, or available at all; or
§   the medical information on this website is complete, true, accurate, up-to-date, or non-misleading.
You must not rely on the information in this document as an alternative to medical advice from your doctor or other professional healthcare provider. If you have any specific questions about any medical matter you should consult your doctor or other professional healthcare provider. If you think you may be suffering from any medical condition you should seek immediately medical attention.
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Wednesday, 11 April 2012

Becoming the Bionic Woman – Part Two


If you haven’t read my original post Becoming the Bionic Woman, you may want to read that first.
Becoming the Bionic Woman

If you’ve read my post “Becoming the Bionic Woman”, you would know that I’ve been trialling the Phonak  Audéo S IX SMART (a micro Behind-The-Ear hearing aid). The trial was originally intended to be seven days however as it was the long Easter weekend, my audiologist very kindly let me borrow the device for an extra six days. Yay!

However, about eight days into the trial, the hearing aid battery died and I was abruptly thrust back into a world of partial hearing & decreased orientation. Suddenly I felt like an addict that needed to score. I was thinking, “Where can I get a hearing aid battery on a holiday weekend? Will the chemist be open? Will they have the battery I need?” Getting that battery became my number one priority. The shops were closed, so I spent an evening without a working hearing aid. Needless to say, I was strung out.

The following day I made a bee line for the chemist and the sales lady found a new battery that matched the one in the hearing aid. I put the hearing aid back in and sighed a relief to be “bionic” again. However the next day much to my surprise I heard the distinctive “ding, ding” sounds that the hearing aid was running out of power again. “No!!” Although the replacement battery was a fit, it was a lesser strength one intended for watches & other small medical devices. I needed a longer life battery.

So back to the chemist I went again only to be informed that they were out of stock of hearing aid specific batteries, so I bought up a few regular ones to get me through the long weekend.

Anyway, today my trial was up. It was time to return the device and decide whether to order a custom hearing aid or not. “You don’t know what you’ve got until it’s gone” is the phrase that comes to mind at this point. The answer to my decision was a clear yes.

I had though one obstacle in my way… money. Living in the post GFC world that we do, my credit card is fairly maxed out. So I wasn’t sure that I could currently afford the Phonak Nano Ambra I was hoping to purchase (approx. AUD$4,500 fitted).

My audiologist, Michelle Nicholls, at the Neurosensory Unit in Brisbane mentioned that Phonak is owned by Sonova Group which also owns Unitron. According to Michelle, Unitron will be launching a comparative hearing aid on April 30 2012. Unitron’s Quantum micro CIC can be fitted with either 20, 12 or 6 channels, so it should offer a good alternative to the Phonak Nano Ambra for my moderate hearing loss.

As I have already registered with Australian Hearing (a Department of Human Services) for a partial subsidy to help pay for a hearing aid, the new Unitron Quantum micro CIC (20 channels) might only set me back around AUD$3,200 (including fitting & government subsidy). So potentially there’s a good saving to be made. Bearing this in mind I thought it best to wait until the end of the month before deciding on whether the Phonak Nano Ambra or the Unitron Quantum micro CIC would be better suited to my needs.

Not wanting to waste an audiology appointment, Michelle took a putty imprint of my left ear canal in preparation for ordering a custom fitted hearing aid. That way once I have all the facts, I can just ring up to confirm & pay, then wait for the device to be custom made then delivered to my audiologist for fitting.

Just in case you’re wondering how they make a custom fit hearing aid, here’s how. After the putty imprint of the ear canal is taken, the mould is scanned in house by a 3D scanner, the image is then sent online to the manufacturer. The scanned image is then adjusted and outputted in plastic by a 3D printer. Once it’s cleaned up, a technician fits the plastic shell with the technology. That’s the general idea. I’m sure it’s a more specific process than that. It’s amazing technology.

I’m so glad to be living in “THE FUTURE”. Yes indeed… we do have the technology. 

HAVE YOU HAD A SIMILAR EXPERIENCE? SHARE YOUR COMMENTS BELOW.

Connect with others who have hearing loss
Phonak has started a new online community initiative called Hearing Like Me
It supports those touched by hearing loss through the exchange of experiences. Check it out here: 

Read about the Siemens 3D Scanner which Digitizes Ear Impressions for Customized Hearing Aids

Australian Hearing is a Department of Human Services which provides a choice of hearing aids - from fully subsidised devices through to mid-range, high-range and premium devices. They offer hearing devices made by manufacturers such as Siemens, Bernafon, Phonak, Oticon, GN Resound, Widex and others. Eligibility applies (see below link).
Find out if you’re eligible for Australian Hearing here:

NEWS RELEASE - Unitron Announces Tiniest Quantum Ever 
Quantum 20/12/16 Features

Sunday, 8 April 2012

Echolocation vs. the Quietest Place on Earth


I read a news article this week about an ‘anechoic chamber’* at Orfield Laboratories in North America. The Guinness World Records have declared it “the quietest place on Earth”, for its ability to absorb 99.9% of sound.

The chamber is surrounded by 1m thick fiberglass acoustic wedges, has double walls of insulated steel and 30cm thick concrete (see picture above). According to Steven Orfield, the longest anybody has been able to sit in the darkened chamber was 45mins.

In the dark, it’s so quiet that the occupant becomes the sound, hearing only their body (i.e. heart beating, lungs breathing). Apparently this is a very disorientating experience, so much so that the occupant must be seated.

Mr Orfield said, “How you orient yourself is through sounds you hear when you walk. In the anechoic chamber, you don't have any cues. You take away the perceptual cues that allow you to balance and manoeuvre. If you're in there for half an hour, you have to be in a chair.” As a unilateral, hard of hearing person, I found this statement to be very interesting.

NASA has a similar chamber which they can put a water tank in to ascertain how long it takes before an astronaut starts to hallucinate, or whether they could even work in such an environment. The chamber absorbs electromagnetic energy to simulate the open space environment. Space is like a giant anechoic chamber.

This got me thinking about the connection between our hearing and our orientation in the environment around us. Our inner ear consists of a cochlea (which picks up sound), the labyrinth (semi-circular canals that perceives rotational movements), and the otolithic organs (which transduce linear accelerations). It’s interesting that the cochlea contributes to orientation in so much that that the brain uses sound to support other orientation inputs (Vestibular system, Somatosensory system of proprioception & kinesthesia, Vision). I suppose that’s the reason the inner ear is connected the way that it is.

This reminded me of a teenager I had heard about years ago named Ben Underwood**. Ben, who became blind weeks before his third birthday, had an amazing ability to use echolocation to ‘see’ his environment. Echolocation is the ability to detect the surrounding environment by sensing echoes bouncing off objects.
By clicking his tongue, Ben was able to hear the distinctive echoes around him. One of Ben’s observations was that “people sound just like the surface of water” (which would make sense considering the human body averages approx. 60% water). He became so good at using echolocation that he was able to ride a bike, rollerblade, play video games, try karate and even surf waves.

Even though a sighted person wouldn’t use the clicking technique employed by Ben, they would still rely on their hearing to navigate as demonstrated in the darkened anechoic chamber.

*Anechoic: Neither having nor producing echoes.
**Unfortunately Ben passed away in 2009 from a brain tumour just before his seventeenth birthday. He lived a remarkable life in a short time and still inspires others today.


HAVE YOU FOUND THAT YOUR ORIENTATION HAS DIMINISHED WITH YOUR HEARING LOSS? IF SO, SHARE YOUR EXPERIENCES BELOW.

Read more about The Quietest Place on Earth here:

Read more about Ben’s Echolocation here: